Disclaimer

I wanted to start by saying that this experience is unique to me and my medical situation.

I have a cavernous malformation in my right temporal lobe. This is in a location that is on the surface, and I’m told it is easy to resect with minimal or no damage to healthy brain tissue. On my MRIs, there was evidence of bleeding and a large “blooming” around the small lesion. This was an indication of prior bleeds, and in my 2026 MRI there was evidence of a recent active, small bleed.

People who read this and have to have brain surgery may have much more complicated medical situations and decision-making. Your recovery may be more difficult, and your ability to care for your child can certainly be compromised by that. I have so much compassion for you. The reason I’m doing this is that I really wanted to have some kind of understanding of what this could be like. I hope this gives you comfort.

I am very aware that my situation is relatively lucky due to the location and the high statistical evidence that this could cure my epilepsy and also eliminate the chance of further bleeding in this region.